Cystic fibrosis is a life-threatening, genetic disorder. CF causes severe damage to the lungs and digestive system. There is currently no cure; however, with improved medication and treatment to manage symptoms, life expectancy has been extended considerably. As an organization, our goal is to help improve the quality of life for those suffering with cystic fibrosis and give them back a small piece of joy the disease has taken away.
FFCF contributes to the special needs of families in the following ways:
Care packages for children and young adults when hospitalized
Assisting with medical supplies and/or equipment that is not covered by other resources
Contributing to lung transplant procedures
Assisting in funding medical equipment or needs of patients through the local CF Care Center at DeVos Children’s Hospital
A determined individual special need
Our group is neither operated, nor funded by the Cystic Fibrosis Foundation.
We believe CF can mean Cure Found!
Friends & Families of Cystic Fibrosis is a nonprofit organization composed of volunteers dedicated to raising monies in support of children and adults affected with cystic fibrosis in West Michigan.
We believe children, families, and friends of individuals with Cystic Fibrosis should have something to smile about, something to be happy about, and to know that they are not alone.