FFCF contributes to the special needs of families in the following ways:
- Care packages for children and young adults when hospitalized
- Assisting with medical supplies and/or equipment that is not covered by other resources
- Contributing to lung transplant procedures
- Assisting in funding medical equipment or needs of patients through the local CF Care Center at DeVos Children’s Hospital
- A determined individual special need
Cystic fibrosis is a life-threatening, genetic disorder. CF causes severe damage to the lungs and digestive system. There is currently no cure; however, with improved medication and treatment to manage symptoms, life expectancy has been extended considerably. As an organization, our goal is to help improve the quality of life for those suffering with cystic fibrosis and give them back a small piece of joy the disease has taken away.
Our group is not operated, nor funded by the Cystic Fibrosis Foundation.
Here are just a few examples of how FFCF has been able give back to CF families in recent years:
- Supplying and delivering care packages for children and young adults when hospitalized
- Funding flu shots for the CF Care Center
- Helping with rent, mortgage and utility payments
- Providing educational tools for CF children and adults
- Medical equipment not covered by insurance
- Gym memberships
- Funding towards funeral expenses
- Assorted items needed by CF adults
From all of us, Thank You!
It is the second most common inherited disorder.
Cystic fibrosis causes the body to produce thick and sticky mucus.
It clogs the lungs and leads to life-threatening lung infections.
About 1,000 new cases of cystic fibrosis are diagnosed each year.
More than 70% of patients are diagnosed by age two.
The predicted median age of survival for a person with CF is in the late 30s.
More than 45% of the CF patient population is age 18 or older.
If diagnosed at birth, a typical CF patient will have over 1,200 hours of
Physio Therapy(PT) by the age of 5, more if they get sick.